Discordance between physician and the general public perceptions of prognostic disclosure to children with serious illness

A Korean nationwide study

Min Sun Kim, Jihye Lee, Jin Ah Sim, Jung Hye Kwon, Eun Joo Kang, Yu Jung Kim, Junglim Lee, Eun Kee Song, Jung Hun Kang, Eun Mi Nam, Si Young Kim, Hwan Jung Yun, Kyung Hae Jung, June Dong Park, Young Ho Yun

Research output: Contribution to journalArticle

Abstract

Background: It is difficult to decide whether to inform the child of the incurable illness. We investigated attitudes of the general population and physicians toward prognosis disclosure to children and associated factors in Korea. Methods: Physicians working in one of 13 university hospitals or the National Cancer Center and members of the general public responded to the questionnaire. The questionnaire consisted of the age appropriate for informing children about the prognosis and the reason why children should not be informed. This survey was conducted as part of research to identify perceptions of physicians and general public on the end-of-life care in Korea. Results: A total of 928 physicians and 1,241 members of the general public in Korea completed the questionnaire. Whereas 92.7% of physicians said that children should be informed of their incurable illness, only 50.7% of the general population agreed. Physicians were also more likely to think that younger children should know about their poor prognosis compared with the general population. Physicians who opposed incurable illness disclosure suggested that children might not understand the situation, whereas the general public was primarily concerned that disclosure would exacerbate the disease. Physicians who were women or religious were more likely to want to inform children of their poor prognosis. In the general population, gender, education, comorbidity, and caregiver experience were related to attitude toward poor prognosis disclosure to children. Conclusion: Our findings indicate that physicians and the general public in Korea differ in their perceptions about informing children of poor prognosis.

Original languageEnglish
Article numbere327
JournalJournal of Korean Medical Science
Volume33
Issue number49
DOIs
Publication statusPublished - 2018 Dec 1

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Disclosure
Physicians
Korea
Population
Terminal Care
Caregivers
Comorbidity
Education
Surveys and Questionnaires

Keywords

  • Pediatric advance care planning
  • Pediatric palliative care
  • Prognostic disclosure to children
  • Republic of Korea

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Discordance between physician and the general public perceptions of prognostic disclosure to children with serious illness : A Korean nationwide study. / Kim, Min Sun; Lee, Jihye; Sim, Jin Ah; Kwon, Jung Hye; Kang, Eun Joo; Kim, Yu Jung; Lee, Junglim; Song, Eun Kee; Kang, Jung Hun; Nam, Eun Mi; Kim, Si Young; Yun, Hwan Jung; Jung, Kyung Hae; Park, June Dong; Yun, Young Ho.

In: Journal of Korean Medical Science, Vol. 33, No. 49, e327, 01.12.2018.

Research output: Contribution to journalArticle

Kim, MS, Lee, J, Sim, JA, Kwon, JH, Kang, EJ, Kim, YJ, Lee, J, Song, EK, Kang, JH, Nam, EM, Kim, SY, Yun, HJ, Jung, KH, Park, JD & Yun, YH 2018, 'Discordance between physician and the general public perceptions of prognostic disclosure to children with serious illness: A Korean nationwide study', Journal of Korean Medical Science, vol. 33, no. 49, e327. https://doi.org/10.3346/jkms.2018.33.e327
Kim, Min Sun ; Lee, Jihye ; Sim, Jin Ah ; Kwon, Jung Hye ; Kang, Eun Joo ; Kim, Yu Jung ; Lee, Junglim ; Song, Eun Kee ; Kang, Jung Hun ; Nam, Eun Mi ; Kim, Si Young ; Yun, Hwan Jung ; Jung, Kyung Hae ; Park, June Dong ; Yun, Young Ho. / Discordance between physician and the general public perceptions of prognostic disclosure to children with serious illness : A Korean nationwide study. In: Journal of Korean Medical Science. 2018 ; Vol. 33, No. 49.
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abstract = "Background: It is difficult to decide whether to inform the child of the incurable illness. We investigated attitudes of the general population and physicians toward prognosis disclosure to children and associated factors in Korea. Methods: Physicians working in one of 13 university hospitals or the National Cancer Center and members of the general public responded to the questionnaire. The questionnaire consisted of the age appropriate for informing children about the prognosis and the reason why children should not be informed. This survey was conducted as part of research to identify perceptions of physicians and general public on the end-of-life care in Korea. Results: A total of 928 physicians and 1,241 members of the general public in Korea completed the questionnaire. Whereas 92.7{\%} of physicians said that children should be informed of their incurable illness, only 50.7{\%} of the general population agreed. Physicians were also more likely to think that younger children should know about their poor prognosis compared with the general population. Physicians who opposed incurable illness disclosure suggested that children might not understand the situation, whereas the general public was primarily concerned that disclosure would exacerbate the disease. Physicians who were women or religious were more likely to want to inform children of their poor prognosis. In the general population, gender, education, comorbidity, and caregiver experience were related to attitude toward poor prognosis disclosure to children. Conclusion: Our findings indicate that physicians and the general public in Korea differ in their perceptions about informing children of poor prognosis.",
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T2 - A Korean nationwide study

AU - Kim, Min Sun

AU - Lee, Jihye

AU - Sim, Jin Ah

AU - Kwon, Jung Hye

AU - Kang, Eun Joo

AU - Kim, Yu Jung

AU - Lee, Junglim

AU - Song, Eun Kee

AU - Kang, Jung Hun

AU - Nam, Eun Mi

AU - Kim, Si Young

AU - Yun, Hwan Jung

AU - Jung, Kyung Hae

AU - Park, June Dong

AU - Yun, Young Ho

PY - 2018/12/1

Y1 - 2018/12/1

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AB - Background: It is difficult to decide whether to inform the child of the incurable illness. We investigated attitudes of the general population and physicians toward prognosis disclosure to children and associated factors in Korea. Methods: Physicians working in one of 13 university hospitals or the National Cancer Center and members of the general public responded to the questionnaire. The questionnaire consisted of the age appropriate for informing children about the prognosis and the reason why children should not be informed. This survey was conducted as part of research to identify perceptions of physicians and general public on the end-of-life care in Korea. Results: A total of 928 physicians and 1,241 members of the general public in Korea completed the questionnaire. Whereas 92.7% of physicians said that children should be informed of their incurable illness, only 50.7% of the general population agreed. Physicians were also more likely to think that younger children should know about their poor prognosis compared with the general population. Physicians who opposed incurable illness disclosure suggested that children might not understand the situation, whereas the general public was primarily concerned that disclosure would exacerbate the disease. Physicians who were women or religious were more likely to want to inform children of their poor prognosis. In the general population, gender, education, comorbidity, and caregiver experience were related to attitude toward poor prognosis disclosure to children. Conclusion: Our findings indicate that physicians and the general public in Korea differ in their perceptions about informing children of poor prognosis.

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