Does the new Korean term for epilepsy reduce the stigma for Korean adults with epilepsy?

Sang Ahm Lee, Su Hyun Han, Yang Je Cho, Keun Tae Kim, Ji Eun Kim, Dong Jin Shin, Jong Geun Seo, Young Soo Kim, Han Uk Ryu, Seo Young Lee, Jung Bin Kim, Kyung Wook Kang, Shinhye Kim, Soonhak Kwon, Joonsik Kim, Sunjun Kim, Hyo Jeong Kim, So Hee Eun, Yun Jung Hur, Sun Ah ChoiMi Sun Yum, Soyoung Park, Jee Hyun Kim, Gha Hyun Lee, Young Mi Kim, Kyoung Jin Hwang, Eun Young Kim, Gyu Min Yeon

    Research output: Contribution to journalArticlepeer-review

    2 Citations (Scopus)

    Abstract

    Purpose: The purpose of this study was to evaluate differences in stigma, disclosure management of epilepsy, and knowledge about epilepsy between patients with epilepsy who recognized and did not recognize the new Korean term for epilepsy. Methods: This was a cross-sectional, multicenter study. The Stigma Scale-Revised, the Disclosure Management Scale, the Patient Health Questionnaire-9, and a questionnaire assessing knowledge about epilepsy were used. The set of questionnaires had two versions, using either the old or new name for epilepsy. Multivariate logistic regression analyses were used. Results: A total of 341 patients with epilepsy and 509 family members were recruited. Approximately 62% of patients felt some degree of epilepsy-related stigma. Mild stigma, severe concealment of epilepsy diagnosis, and increased knowledge about epilepsy were independently identified as factors associated with recognition of the new term in patients. Recognition of the new term was more prevalent in patients and family members with higher education, female family members, and family members having patients with younger age at seizure onset and shorter duration of epilepsy. There were no significant differences between the two types of questionnaires. About 81% of patients and 93% of family members had a positive attitude about renaming epilepsy. Conclusion: The use of the new Korean term for epilepsy (cerebroelectric disorder) increased knowledge about epilepsy but did not reduce stigma and concealment of epilepsy diagnosis in Korean adults with epilepsy. Higher education may be an important factor for knowing the new term in patients and family members.

    Original languageEnglish
    Article number106719
    JournalEpilepsy and Behavior
    Volume102
    DOIs
    Publication statusPublished - 2020 Jan

    Keywords

    • Depression
    • Disclosure of epilepsy diagnosis
    • Epilepsy
    • Knowledge about epilepsy
    • Renaming epilepsy
    • Stigma

    ASJC Scopus subject areas

    • Neurology
    • Clinical Neurology
    • Behavioral Neuroscience

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