Factors contributing to the development of perceived stigma in people with newly diagnosed epilepsy: A one-year longitudinal study

Gha Hyun Lee, Sang Ahm Lee, Soon Kee No, Sang Moo Lee, Ji Yeon Ryu, Kwang Deog Jo, Jee Hyun Kwon, Ok Joon Kim, Hyungkook Park, Oh Young Kwon, Ji Hyun Kim, Won Joo Kim

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15 Citations (Scopus)

Abstract

Purpose: We evaluated the course of perceived stigma and the factors associated with perceived stigma over the first year in newly diagnosed people with epilepsy (PWE). Methods: We recruited newly diagnosed PWE from 12 tertiary hospitals in Korea. The perceived stigma of epilepsy was assessed using the Stigma Scale at baseline and one year later. At the time of diagnosis, demographic, clinical seizure-related, and psychological data were collected. The predictive factors for perceived stigma over one year were analyzed using logistic regression analyses. Results: Two hundred eighteen newly diagnosed PWE were included at baseline, and 153 completed the study. The percentage of participants who felt stigmatized decreased from 30.7% at the time of diagnosis to 17.6% at the end of follow-up. Introverted personality and a high level of anxiety were independent factors contributing to stigma at the time of epilepsy diagnosis. At the one-year follow-up, introverted personality and lower economic status were predictive of the development of perceived stigma. Conclusion: Introverted personality was an important factor contributing to the development of perceived stigma at the time of diagnosis and at one year after diagnosis. In addition, a high level of anxiety and a low economic status were independently related to feelings of stigma at baseline and at one year after diagnosis, respectively. There may be a decrease in the perception of stigma over one year in newly diagnosed PWE.

Original languageEnglish
Pages (from-to)1-6
Number of pages6
JournalEpilepsy and Behavior
Volume54
DOIs
Publication statusPublished - 2016 Jan 1

Keywords

  • Anxiety
  • Depression
  • Epilepsy
  • Introverted personality
  • Newly diagnosed
  • Stigma

ASJC Scopus subject areas

  • Neurology
  • Clinical Neurology
  • Behavioral Neuroscience

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  • Cite this

    Lee, G. H., Lee, S. A., No, S. K., Lee, S. M., Ryu, J. Y., Jo, K. D., Kwon, J. H., Kim, O. J., Park, H., Kwon, O. Y., Kim, J. H., & Kim, W. J. (2016). Factors contributing to the development of perceived stigma in people with newly diagnosed epilepsy: A one-year longitudinal study. Epilepsy and Behavior, 54, 1-6. https://doi.org/10.1016/j.yebeh.2015.10.024