Patient-reported assessment of quality care at end of life: Development and validation of Quality Care Questionnaire-End of Life (QCQ-EOL)

Young Ho Yun, Soo Hyun Kim, Kyoung Min Lee, Sang Min Park, Chang Geol Lee, Youn Seon Choi, Won Sup Lee, Si Young Kim, Dae Seog Heo

Research output: Contribution to journalArticle

22 Citations (Scopus)

Abstract

Our goal was to validate an instrument with which terminally ill patients could evaluate the quality of care they receive at the end of life (EOL). Questionnaire development followed a four-phase process: item generation and reduction, construction, pilot testing, and field-testing. Using relevance and priority criteria and pilot testing, we developed a 16-item questionnaire. Factor analyses of data from 235 patients resulted in the Quality Care Questionnaire-End of Life (QCQ-EOL) covering dignity-conserving care, care by health care professionals, individualised care, and family relationships. All subscales and total scores showed high internal consistency (Cronbach alpha range, 0.73-0.89). The ability of total score and selective subscale scores clearly differentiated patients on the basis of clinical situation, sense of dignity, and general rating of care quality. Correlations of scores between patients and caregivers were substantial. The QCQ-EOL can be adopted to assess the quality of care received by terminally ill patients.

Original languageEnglish
Pages (from-to)2310-2317
Number of pages8
JournalEuropean Journal of Cancer
Volume42
Issue number14
DOIs
Publication statusPublished - 2006 Sep 1

Fingerprint

Quality of Health Care
Terminally Ill
Caregivers
Statistical Factor Analysis
Surveys and Questionnaires
Delivery of Health Care

Keywords

  • End of life
  • QCQ-EOL
  • Quality of care
  • Validation

ASJC Scopus subject areas

  • Oncology
  • Cancer Research

Cite this

Patient-reported assessment of quality care at end of life : Development and validation of Quality Care Questionnaire-End of Life (QCQ-EOL). / Yun, Young Ho; Kim, Soo Hyun; Lee, Kyoung Min; Park, Sang Min; Lee, Chang Geol; Choi, Youn Seon; Lee, Won Sup; Kim, Si Young; Heo, Dae Seog.

In: European Journal of Cancer, Vol. 42, No. 14, 01.09.2006, p. 2310-2317.

Research output: Contribution to journalArticle

Yun, Young Ho ; Kim, Soo Hyun ; Lee, Kyoung Min ; Park, Sang Min ; Lee, Chang Geol ; Choi, Youn Seon ; Lee, Won Sup ; Kim, Si Young ; Heo, Dae Seog. / Patient-reported assessment of quality care at end of life : Development and validation of Quality Care Questionnaire-End of Life (QCQ-EOL). In: European Journal of Cancer. 2006 ; Vol. 42, No. 14. pp. 2310-2317.
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