Patient-reported assessment of quality care at end of life: Development and validation of Quality Care Questionnaire-End of Life (QCQ-EOL)

Young Ho Yun, Soo Hyun Kim, Kyoung Min Lee, Sang Min Park, Chang Geol Lee, Youn Seon Choi, Won Sup Lee, Si Young Kim, Dae Seog Heo

Research output: Contribution to journalArticle

22 Citations (Scopus)

Abstract

Our goal was to validate an instrument with which terminally ill patients could evaluate the quality of care they receive at the end of life (EOL). Questionnaire development followed a four-phase process: item generation and reduction, construction, pilot testing, and field-testing. Using relevance and priority criteria and pilot testing, we developed a 16-item questionnaire. Factor analyses of data from 235 patients resulted in the Quality Care Questionnaire-End of Life (QCQ-EOL) covering dignity-conserving care, care by health care professionals, individualised care, and family relationships. All subscales and total scores showed high internal consistency (Cronbach alpha range, 0.73-0.89). The ability of total score and selective subscale scores clearly differentiated patients on the basis of clinical situation, sense of dignity, and general rating of care quality. Correlations of scores between patients and caregivers were substantial. The QCQ-EOL can be adopted to assess the quality of care received by terminally ill patients.

Original languageEnglish
Pages (from-to)2310-2317
Number of pages8
JournalEuropean Journal of Cancer
Volume42
Issue number14
DOIs
Publication statusPublished - 2006 Sep

Keywords

  • End of life
  • QCQ-EOL
  • Quality of care
  • Validation

ASJC Scopus subject areas

  • Oncology
  • Cancer Research

Fingerprint Dive into the research topics of 'Patient-reported assessment of quality care at end of life: Development and validation of Quality Care Questionnaire-End of Life (QCQ-EOL)'. Together they form a unique fingerprint.

  • Cite this