Priorities of a “good death” according to cancer patients, their family caregivers, physicians, and the general population: a nationwide survey

Young Ho Yun, Kyoung Nam Kim, Jin Ah Sim, Eun Kyo Kang, Jihye Lee, Jiyeon Choo, Shin Hye Yoo, Miso Kim, Young Ae Kim, Beo Deul Kang, Hyun Jeong Shim, Eun Kee Song, Jung Hun Kang, Jung Hye Kwon, Jung Lim Lee, Soon Nam Lee, Chi Hoon Maeng, Eun Joo Kang, Young Rok Do, Yoon Seok ChoiKyung Hae Jung

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Purpose: Understanding the concept of a “good death” is crucial to end-of-life care, but our current understanding of what constitutes a good death is insufficient. Here, we investigated the components of a good death that are important to the general population, cancer patients, their families, and physicians. Methods: We conducted a stratified nationwide cross-sectional survey of cancer patients and their families from 12 hospitals, physicians from 12 hospitals and the Korean Medical Association, and the general population, investigating their attitudes toward 10 good-death components. Findings: Three components—“not be a burden to the family,” “presence of family,” and “resolve unfinished business”—were considered the most important components by more than 2/3 of each of the three groups, and an additional three components—“freedom from pain,” “feel that life was meaningful,” and “at peace with God”—were considered important by all but the physicians group. Physicians considered “feel life was meaningful,” “presence of family,” and “not be a burden to family” as the core components of a good death, with “freedom from pain” as an additional component. “Treatment choices’ followed, “finances in order,” “mentally aware,” and “die at home” were found to be the least important components among all four groups. Conclusion: While families strongly agreed that “presence of family” and “not be a burden to family” were important to a good death, the importance of other factors differed between the groups. Health care providers should attempt to discern each patient’s view of a good death.

Original languageEnglish
Pages (from-to)3479-3488
Number of pages10
JournalSupportive Care in Cancer
Volume26
Issue number10
DOIs
Publication statusPublished - 2018 Oct 1

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Family Physicians
Caregivers
Population
Neoplasms
Physicians
Pain
Terminal Care
Surveys and Questionnaires
Health Personnel
Cross-Sectional Studies

Keywords

  • Attitudes toward death
  • Cancer
  • End-of-life
  • Good death

ASJC Scopus subject areas

  • Oncology

Cite this

Priorities of a “good death” according to cancer patients, their family caregivers, physicians, and the general population : a nationwide survey. / Yun, Young Ho; Kim, Kyoung Nam; Sim, Jin Ah; Kang, Eun Kyo; Lee, Jihye; Choo, Jiyeon; Yoo, Shin Hye; Kim, Miso; Kim, Young Ae; Kang, Beo Deul; Shim, Hyun Jeong; Song, Eun Kee; Kang, Jung Hun; Kwon, Jung Hye; Lee, Jung Lim; Lee, Soon Nam; Maeng, Chi Hoon; Kang, Eun Joo; Do, Young Rok; Choi, Yoon Seok; Jung, Kyung Hae.

In: Supportive Care in Cancer, Vol. 26, No. 10, 01.10.2018, p. 3479-3488.

Research output: Contribution to journalArticle

Yun, YH, Kim, KN, Sim, JA, Kang, EK, Lee, J, Choo, J, Yoo, SH, Kim, M, Kim, YA, Kang, BD, Shim, HJ, Song, EK, Kang, JH, Kwon, JH, Lee, JL, Lee, SN, Maeng, CH, Kang, EJ, Do, YR, Choi, YS & Jung, KH 2018, 'Priorities of a “good death” according to cancer patients, their family caregivers, physicians, and the general population: a nationwide survey', Supportive Care in Cancer, vol. 26, no. 10, pp. 3479-3488. https://doi.org/10.1007/s00520-018-4209-y
Yun, Young Ho ; Kim, Kyoung Nam ; Sim, Jin Ah ; Kang, Eun Kyo ; Lee, Jihye ; Choo, Jiyeon ; Yoo, Shin Hye ; Kim, Miso ; Kim, Young Ae ; Kang, Beo Deul ; Shim, Hyun Jeong ; Song, Eun Kee ; Kang, Jung Hun ; Kwon, Jung Hye ; Lee, Jung Lim ; Lee, Soon Nam ; Maeng, Chi Hoon ; Kang, Eun Joo ; Do, Young Rok ; Choi, Yoon Seok ; Jung, Kyung Hae. / Priorities of a “good death” according to cancer patients, their family caregivers, physicians, and the general population : a nationwide survey. In: Supportive Care in Cancer. 2018 ; Vol. 26, No. 10. pp. 3479-3488.
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T1 - Priorities of a “good death” according to cancer patients, their family caregivers, physicians, and the general population

T2 - a nationwide survey

AU - Yun, Young Ho

AU - Kim, Kyoung Nam

AU - Sim, Jin Ah

AU - Kang, Eun Kyo

AU - Lee, Jihye

AU - Choo, Jiyeon

AU - Yoo, Shin Hye

AU - Kim, Miso

AU - Kim, Young Ae

AU - Kang, Beo Deul

AU - Shim, Hyun Jeong

AU - Song, Eun Kee

AU - Kang, Jung Hun

AU - Kwon, Jung Hye

AU - Lee, Jung Lim

AU - Lee, Soon Nam

AU - Maeng, Chi Hoon

AU - Kang, Eun Joo

AU - Do, Young Rok

AU - Choi, Yoon Seok

AU - Jung, Kyung Hae

PY - 2018/10/1

Y1 - 2018/10/1

N2 - Purpose: Understanding the concept of a “good death” is crucial to end-of-life care, but our current understanding of what constitutes a good death is insufficient. Here, we investigated the components of a good death that are important to the general population, cancer patients, their families, and physicians. Methods: We conducted a stratified nationwide cross-sectional survey of cancer patients and their families from 12 hospitals, physicians from 12 hospitals and the Korean Medical Association, and the general population, investigating their attitudes toward 10 good-death components. Findings: Three components—“not be a burden to the family,” “presence of family,” and “resolve unfinished business”—were considered the most important components by more than 2/3 of each of the three groups, and an additional three components—“freedom from pain,” “feel that life was meaningful,” and “at peace with God”—were considered important by all but the physicians group. Physicians considered “feel life was meaningful,” “presence of family,” and “not be a burden to family” as the core components of a good death, with “freedom from pain” as an additional component. “Treatment choices’ followed, “finances in order,” “mentally aware,” and “die at home” were found to be the least important components among all four groups. Conclusion: While families strongly agreed that “presence of family” and “not be a burden to family” were important to a good death, the importance of other factors differed between the groups. Health care providers should attempt to discern each patient’s view of a good death.

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KW - Attitudes toward death

KW - Cancer

KW - End-of-life

KW - Good death

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